‘Avoid the first person singular pronoun’ Father Silvera had dinned into us. Sorry Father, this time I need to break the rule. So far my blog posts under ‘satish-oneeyeclosed.blogspot.com’ have been satirical in nature. There are, however, some matters serious enough to be looked at with both eyes open. And few things are more serious than Stage IV Cancer.
It is almost two years since I was diagnosed with Stage IV--final stage--Adenocarcinoma of the lung with a secondary in the radius bone of my right forearm. It had evidently got into my blood stream. The prognosis seemed exceedingly bleak, with talk of ‘at best a few months’. Four rounds of Chemotherapy and two Supra Major surgeries –Lobectomy of the left lung and replacement of the right forearm radius bone with a custom built Titanium replica made in England –were followed by two more rounds of Chemotherapy and, to everyone’s surprise, I was declared Cancer free. To quote one of the country’s leading Oncologists from Tata Memorial Hospital, ‘with you we are entering uncharted territory’. I have since then remained Cancer free with periodic check-ups and some new age Targeted Molecular Therapy. A few doctor friends have been urging me to speak out openly about my experience in the hope that it might help others. What has worked for me, so far certainly, may not work for everyone but it might be worth a try. So here goes:
1. When the news of Stage IV Cancer Diagnosis is broken to anyone, the first reaction is bound to be shock, followed by How Can This Happen To Me? Doctors goofed, Technicians goofed, Hospitals goofed …forget it. Face the problem squarely if you want to have a chance to deal with it.
2. Don’t bother about keeping the information a secret. Cancer news is more radioactive than nuclear knowledge in Dr. Khan’s hands. It is bound to spread. Preempt it by sharing it with your nearest and dearest. They are entitled to know. One or two days of shock and every healthy person above 12 years can cope with it. That allows you to concentrate on important decisions, without worrying about trivia like ‘x won’t be able to take it’ and ‘why was y told and not z?’
3. To fight Cancer, you need resources. Medical Access, Manpower and Money. Assess your resources carefully even as you try to decide your line of action.
4. Your objective, even if you are the richest person on earth, should be to get the best medical treatment at the most reasonable price. Remember, expensive does not always mean the best.
5. Some tough decisions will need to be made---and few of us are trained for life-or-death decisions. Sincere advice will pour in: try alternate medicine, try spiritual healing, there is a miracle doctor in Gangtok. Ask yourself: which of my well wishers are knowledgeable enough to advise meaningfully and have the stamina to devote the time and effort which will be needed? You must be smart to pick a sensible 3/4 member family/ friend decision making and support team of your own. Some people revel in researching options with long Google sessions; some excel with diets, others are smart about money and insurance and some have a knack of navigating through complicated hospital systems. All areas are important, choose a balanced team.
6. With your support team in place, choose your main Medical Adviser. S/he need not be an Oncologist, but should be able to help you figure out who will be a good Medical Oncologist for you. S/he will help steer you through the maze of Chemotherapy, Surgery, Radiotherapy and Alternate Therapy decisions, so practically 24x7 availability at least on phone is extremely important.
7. Select your Medical Oncologist/ Facility with care. At Stage IV, more than one organ would be involved and more than one specialist will be needed but your ‘lead’ doctor is likely to be a Medical Oncologist. Your Medical Adviser will help you choose not just your Medical Oncologist but also a facility where, preferably, all expertise/ services will be available under one roof at rates you can afford.
8. In case of conflict, go for better Medical Expertise rather than just 5 Star Facilities: Expertise is priceless, Scans are priced and you have choices.
9. Get your full primary line of action or Protocol sorted out before starting treatment. Also, as your second string, decide on one Alternate therapy, with the knowledge of your Medical Adviser; I chose Homeopathy. Simultaneously, have your Diet plan chalked out. Have faith in your Med/ Alt Med/ Diet plan but review it once a month with your team to see if everything is on track.
10. Most important, once your treatment starts, give it time to work and FORGET YOU HAVE CANCER. Concentrate on an activity of interest to you. I focused on Internet Bridge and set specific ratings goals. During reduced immunity periods of Chemotherapy, I wore a mask to work but did not miss any important working day during the 5 month treatment period. And since few things can be more devastating for a writer than the loss of his right hand, I learnt to type with my left hand--it is easier than you think-- and managed. All this to ensure that while the body fights Cancer, the mind gets a break from Cancer.
From Diagnosis to forgetting Cancer, you have about a week or two with luck. I am acutely aware that I have been incredibly lucky in other ways too. The Chemotherapy medicine which evidently worked for me with manageable side effects came into the world market only in 2008; the diagnostic technique which was the key came to India only in 2005 and some of the implants/procedures involved in my forearm surgery were among the first two or three in the world, amazingly ensuring practically no long term loss of hand functions.
Fighting Stage IV Cancer is possible and Forgetting Stage IV Cancer is also possible; forgetting the Doctors who did the fighting is not. So, in the sequence in which they did the fighting for me, Dr. Hemant Tongaonkar (Prof. of Surgery, TMH), Dr. Kumar Prabhash (Medical Oncologist, TMH), Dr. Manish Agarwal (Orthopedic Surgeon & Oncologist, then TMH, now Hinduja), Dr Raman Deshpande, (Prof. and Surgeon, Thoracic Oncology, Raheja Hospital), and Dr. K.P. Muzumdar, Doyen of Homeopathy, here’s a sincere, heartfelt thank you!
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That is called fighting spirit.leading to spirited effort to create new goals.
ReplyDeleteThis comment has been removed by a blog administrator.
DeleteThanks Sushama. Once you stop the C word from scaring you and take it step by step, in the end it all looks like a fight. But that is the virtue of hindsight!
ReplyDeleteUncle, don't have words to express myself. This post is fascinating and admirable. All of us can learn simple things about life from this post- cancer or no cancer. Kudos to your spirit!
ReplyDeleteThanks Sukhada. I learnt by making mistakes when I was young, I am hoping this helps at least a few avoid that route:)
ReplyDeleteSatish, thanks for coming and looking at my writing. It is great to read about your fight with cancer.
ReplyDeleteLike you, I have another friend, who was diagnosed with lung cancer, who is also cancer free till now, almost one year after.
It is great to know that medicine and human spirit together can find new ways out of situations that had no hope earlier.
Thanks Sunil. Yes, modern medicine has indeed taken giant steps.
ReplyDeleteInspiring words indeed...Thanks for sharing the lessons from your experience. Hats off to you ...Good luck !
ReplyDeleteThanks Dolas.
ReplyDeleteHi. I'm Shivani's friend and just chanced by this link on her Facebook page. My brother was diagnosed with Cancer when he was 5 and I, 15. In the last 10 years, I've read a lot about Cancer, but there's this emotional, almost sentimental tinge that I've found or attached to all that writing. What I appreciate about your piece, is the real-ness in it. The need to not get overwhelmed and to deal. Thank you.
ReplyDeleteHi Meghna: I am troubled that your family got caught in the cancer net so early in life for your brother and you. With 'not to get overwhelmed by it' you have probably hit the nail on the head. That is true about most other major, life threatening illnesses too. Thanks for dropping by.
ReplyDeleteoh wow!
ReplyDeletelove the positive energy emanating here!
thank you for sharing the link. those 10 points you mentioned are as important as the treatment itself. i'm sure it will help a lot of people in need.
ReplyDeleteThanks Magic, Leo....much appreciated:)
ReplyDeleteMy father has been diagnosed with prostate cancer. Re: your statement on having finances sorted out - wanted to know roughly what magnitude of expenses I should be planning for (for treatment in Bombay).
ReplyDeleteSorry to know Rajesh, but among all forms of the disease, I believe the prognosis for Prostrate Cancer is among the best. Costs will depend on the line of treatment prescribed and the facility you opt for and your Doctor should be able to give you an indication. Tata, Raheja, Hinduja are well equipped, as are a few other hospitals. Do contact me on satishmutatkar@yahoo.com or my FB page in case you want to discuss some more. All the best!
ReplyDeleteThis is really an inspirational post not only for cancer survivors but everyone who are held down by hurdles thrown their way. May you have long cancer free life ahead of you.
ReplyDeleteThanks Farila. I do get mails/ calls regularly, some from far off countries, and I can only hope that whatever I say allays some fears and gives some hopes. The 'need not to get overwhelmed by it' as mentioned by Meghna above probably sums it all up well and that applies to the other 'hurdles' you refer to also. Thanks for dropping by.
ReplyDeleteHello my mother 62 just diagnosed ovarian cancer stage 4. I m very depressed and one chemo is performed already but it's unbearable for mom in fortis Gurgaon under satish Rayne doctor today by reading your blog come to Mumbai to met Dr hemant tong suggest what to do
ReplyDeleteRegards
Email I'd vwconline@yahoo.com
DeletePhone no 09215577776
I love my mom
And I beg please suggest me the best
Hope our many conversations helped a little ds...
ReplyDeleteI have read so many articles on the topic of the blogger lovers but this piece of writing is really a fastidious article, keep it up.
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I have recently been operated upon by Dr Hemant Tongaonkar. I had read your blog before going in for the surgery and I thank you for the strength your blog gave me. I am sharing a link to this post on my blog so that others like me can benefit from it too.
ReplyDeleteAlso, my thanks to Dr Hemant Tongaonkar. He is an excellent doctor.
Hi Varsha: Good to know that you are under the best care possible, good to know that you are fighting it out and good to know that my writing was of some help. The more I see of this disease, the more I get convinced that it respects fighters and often stops bothering them after the initial confrontation:) Do keep writing your Blog. All the best!
ReplyDeleteI also got operated by Hemant Tondgoankar at Hinduja in 2012 and chemo by Kumar Pran hash at Tata. For urinary bladder which was removed I am fine now. Yes both these docs are very good. And Yr edition too good. Kamal
ReplyDeleteI also got operated by Hemant Tondgoankar at Hinduja in 2012 and chemo by Kumar Pran hash at Tata. For urinary bladder which was removed I am fine now. Yes both these docs are very good. And Yr edition too good. Kamal
ReplyDeleteYes Kamal, both the doctors are extremely good. Good to know you are doing well, keep your spirits high!!
ReplyDeleteSatishji, I happened to chance upon your article on Nitin Vaidya's FB page. I am so moved and amazed at your courage and desire to share information and reflections with others. Although I have known and met you off and on, I had no idea you had battled Stage IV cancer successfully. Salute!
ReplyDeleteHi Swati:Thanks a ton for your warm comments. I usually respond immediately and thought I had replied to you too; just realised I had not, a million apologies!
DeleteI think your reply is very timely, in fact. My mother has been diagnosed with Stage IV cancer around a month back. Your reply became a reminder for me to revisit your valuable blog post at a time when I need it the most.
ReplyDeleteDo call me when you can Svati, sent you a message on FB too.
Delete
ReplyDeleteThis blog is very useful for cancer related disease and provide lot of information about Cancer.
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ReplyDeleteCompleted 10 years post diagnosis today!!!
ReplyDeleteKeep your spirits up people, Cancer can be tackled.
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Great fighting spirit
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